One of the diabetes bloggers I read recently posted about the reasons she blogs. So I thought I'd explain one of the main reasons I am blogging.
When you have a child born with a rare disorder, or with symptoms that the doctors just can't fathom, one of the overwhelming feelings is loneliness: a desperate need to know what lies ahead, what the doctors can't tell you.
Finding someone who has been through it all is a massive step forward, the lifting of a huge burden. For us, the doctor in charge of Finlay's case giving us a paper about a German girl that had survived gave us the hope we so desperately needed.
Later, through the internet our story was able to do the same for another family. This article appeared in an Australian magazine about a year and a half ago.
If, in the future, a desperate parent sticks 'pancreatic agenesis' or 'born without a pancreas' into Google, hopefully they'll come across this site and will get some of the answers they need.
So, if you're reading this thanks for coming to the site. The more hits, the greater the chance we can be found through the search engines.