Two Organs Short: A run for anyone's money!

Friday, February 24, 2012

A run for anyone's money!

Since Finlay's birth we have been helped by so many wonderful people. The debt we owe is larger than we could ever pay back. But that shouldn't stop us trying. I posted previously about how we were able to raise funds for one of the charities that helped us through a photo competition that was won by a photo featuring a 5 month old Finlay. (I say we helped but it was really our friend Simon who took the photo and did the work.)

Well we're raising more funds for the @Heart charity and this time it's Vicky that's doing the hard yards....15 long kilometres of them!

The City2Surf is an annual charity run in Christchurch that gives her the chance to raise lots more money to help families of children with heart defects. And this morning she got a piece in the local paper

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About the blog

I am the proud father of three children, one of whom has a rare condition called pancreatic agenesis, which means he was born without a pancreas. He was also born without a gall bladder (hence the two organs short bit!) and with multiple heart defects.

I've read a number of great, thought-provoking, funny and informative blogs by diabetics or parents of diabetics and thought with my son's condition I could write one with a slightly unique viewpoint. With such a rare disease this may become one of the least read blogs on the web, or it may hold some interest for those in the diabetes world, even if just as a curiosity.

And perhaps, for some parents desperately searching the net for anything they can find when they are at their lowest and feeling utterly alone, as we were a few years back, it might offer hope.